
Patient Organisations
Being able to talk with other patients or carers who understand lipodystrophy and can provide relevant advice or share experiences can be particularly helpful. There are several patient organisations established in Europe, their contact details are provided below.

Patient organisations in Europe
France
AFLIP – Association Française des Lipodystrophies
Italy
AILIP - Associazione Italiana Lipodistrofie
Email: info@ailip.it
Website: www.ailip.it
Portugal
AELIP - Asociación Internacional de Familiares y Afectados por Lipodistrofias
Email: info@aelip.org
Website: www.aelip.org
Spain
AELIP - Asociación Internacional de Familiares y Afectados por Lipodistrofias
Email: info@aelip.org
Website: www.aelip.org
United Kingdom
Lipodystrophy UK
Email: LipodystrophyUK@hotmail.com
Website: www.lipodystrophyuk.org
Code: C-LD/UK/0085
Date of preparation January 2023