Patient Organisations

Being able to talk with other patients or carers who understand lipodystrophy and can provide relevant advice or share experiences can be particularly helpful. There are several patient organisations established in Europe, their contact details are provided below.

Patient organisations in Europe

France

AFLIP – Association Française des Lipodystrophies

Email: asflip@free.fr
Website: https://www.helloasso.com/associations/association-francaise-des-lipodystrophies-aflip
Filière FIRENDO: http://www.firendo.fr/fileadmin/user_upload/Page_Associations/Nlle_image_doc_AFLIP_pour_diffusion.pdf

Italy

AILIP - Associazione Italiana Lipodistrofie

Email: info@ailip.it
Website: www.ailip.it

Portugal

AELIP - Asociación Internacional de Familiares y Afectados por Lipodistrofias

Email: info@aelip.org
Website: www.aelip.org

Spain

AELIP - Asociación Internacional de Familiares y Afectados por Lipodistrofias

Email: info@aelip.org
Website: www.aelip.org

United Kingdom

Lipodystrophy UK

Email: LipodystrophyUK@hotmail.com
Website: www.lipodystrophyuk.org

Code: C-LD/UK/0085
Date of preparation January 2023