Patient organisations

Diagnosis of generalised and partial lipodystrophy is challenging owing to a wide variability in clinical manifestations and severity of symptoms. Hence, many patients may experience marked delays in obtaining a definitive diagnosis. Patient organisations might help patients to deal better with their disease and can furthermore provide important detailed information about lipodystrophy.

Patient organisations in Europe

France

Italy

AILIP - Associazione Italiana Lipodistrofie

Email: info@ailip.it
Website: www.ailip.it

Portugal

AELIP - Asociación Internacional de Familiares y Afectados por Lipodistrofias

Email: info@aelip.org
Website: www.aelip.org

Spain

AELIP - Asociación Internacional de Familiares y Afectados por Lipodistrofias

Email: info@aelip.org
Website: www.aelip.org

United Kingdom

Lipodystrophy UK

Code: C-LD/UK/0060
Date of preparation: April 2022